Every parent of a neurodivergent child understands and embodies this wish. It’s dangerous for me to suggest I can read the minds of other parents, but for me—someone whose child will never live independently—I am confident other parents in my situation universally want a safe landing for their vulnerable child. This desire propels us forward, keeps us up at night, and fires our imaginations. 24/7. Of course, all parents want their children to thrive, but neurotypical children, like Ges’s elder sibling, will flourish. This is foundational to our parenting philosophies: we taught our children what they needed to know, they picked up what else they needed to know, and as they grow and evolve, they will learn from and adapt to the vicissitudes of life. We hope the world treats them kindly, but if it doesn’t, we have faith in our children’s resilience.
But the Geses of the world need the world more. They need the world to care, to show up, to be generous. When Ges was little and I was pouring so much of my time and energy into his therapies, I used to think he needed to be different. It took him and his friends to teach me that the reality is that the world needs to be different. It needs to be kinder, as Mr. Farrell wishes. Today, my efforts are focused on helping others around Ges see him. I work hard with the neurotypical coworkers, volunteers, and strangers around my son so that they can start to see the person, not the disabilities. It’s easy to see his disabilities. It’s harder to see his abilities. It takes a generous soul to pause and reflect and see the emotionally intelligent, funny, generous and kind soul my son is.
But what happens when I’m not around to smooth a path for my son? I want to always make sure the world is kind to him. I don’t want to live forever. I just want to live one more day than my child.
My family loves and adores Ges . We see his golden heart, his beautiful smile, his attention to his routine and structure and his ease at following those routines and structures , his joy and laughter when playing on his phone, his love for candy and gum, his excitement for special events and the special treats for those events, his passion for animals, his love for his family, his peacefulness , his bug hugs and so much more. We will forever be in his life bcs we love him and bcs he is family to us.
He loves all of you right back with his whole heart.. 💞
Many years ago, I was a babysitter for both children (now adults). I always enjoyed being with and playing with them. Each were different in many ways but each were also unique and special also.
I admire the parents who truly loved them and engaged with them with love, caring, teaching skills and developing as they grew. It was a unique and wonderful time that I cherish and will never forget.
Thanks to both parents for sharing their children back then with me.
Cheers,
Don
Thanks Don, you were “babysitter extraordinaire”! 🙂